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Not My Best Day

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It’s been another flattish sort of day. I spoke to a nurse practitioner from Rheumatology again today. She was not the same one that I spoke to last week and didn’t have any notes relating to what had been discussed last week.

This was disappointing and inefficient, but it’s happened before. I’m trying my best to be nice to NHS staff during this time of stress. Actually, I try to be nice to NHS staff all the time, but they sometimes make it very difficult.

This proved to be the high point of the discussion, which went rapidly downhill. In the end all the points I’d agreed with the other nurse last week were reversed. She did not like me pointing this out.

She also contradicted the advice given by the doctor a few weeks ago – that I should stay indoors and avoid shops – by telling me I was ‘not special’ and could use public transport.

I’m going to carry on being nice to NHS staff, by not covering the whole conversation and not giving my views. She has, she said, come out of retirement to help out during the crisis. Though I am grateful to her for her efforts, I can’t help reflecting that she was trained in the days when the NHS was less concerned with the dignity of the patient, as it is now called.

An example is how they used to administer spinal anaesthetics. I went in about 16 years ago. They made me sit naked on a bed in a room full of staff while they stabbed me in the spine with needles. Last time I went in they allowed me to wear pants and a gown while they stabbed me in the spine through a gap in the back of the gown. Same stabbing, more dignity.

But they still used the same undignified method of inserting a camera into my bladder…

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